Friday, May 22, 2015

Done?

Done.  Done?  It's something I've said and asked the past two days.  Rewind to Thursday morning...

I had a regularly scheduled follow-up with the oncologist.  As he said "other than it looking like someone poured acid down your chest, you're doing great".  Um, thanks?

The medical assistant was completing my medical release for the First Descent trip in September which was nice to see.  Also nice to see this response:

Patient in Remission?  Yes.

So that's cool.  After that appointment, I got my third anti-hormone shot (ooo...exciting...other butt cheek!).  After, I went to the fancy grocery store with the delicious bakery (mmm...killer brownies...) to pick up some treats to give the radiation techs later.  Figured I could get way more for the money than with an pre-bought fruit basket.  After, it was to campus for some fac/staff wellness yoga (I'll have to post on that later...it's a different sort of practice than I've ever really done...).  Home for lunch then off for my last radiation treatment

 I couldn't help but smile a little when they called me back.  The techs were really appreciative of my  thank you (the one even said she texted her husband...apparently she's a big fan of the cookies I included).  It's an interesting relationship that I built with these people.  I pretty much had three, two girls and a guy, one girl a little more than the other.  The whole process is pretty quick and we fell into a fairly regular routine.  Normal pleasantries were exchanged when I'd arrive.  Then, as I'd lay there and they would align me (mind you I'm half exposed at this point), we'd tend to chit chat a little bit.  I'd find out random things (ex, the guy has kids, lives in Cincinnati, turned on his A/C when it was hot, is from Wisconsin and once worked selling shoes at Macy's), sometimes talk about whether I had biked or not, what was going on at school etc.  Thing is, their job is to go pretty quickly, so these conversations only lasted a few minutes.  But there were thirty-three few minute conversations.  So...yeah, I grew pretty comfortable and familiar with these folks.  Still, when they gave hugs afterwards, it's still a little awkward to be in a hospital gown hugging the people that have seen you half naked for the past 6+ weeks.  They gave me this hilarious (in my mind) certificate:


 
As I was leaving, it was nice to know that I wouldn't be routinely returning at least for some time.  Monthly shots, sure.  Follow-ups, yes.  But real, steady treatment, hopefully not.
 
Semi-emotional interlude.  I'm happy to be done.  It's been a long and interesting 9 months.  Probably the most body-changing, life-impacting 9 months I'll have (especially considering I very well may never be able to conceive a child and go through a pregnancy).  So, yes, being done feels "good".  But it can also be a little scary.  The thought of "when will it come back?" is pretty near the front of my mind.  And yes, I realize that statement could be an "if" rather than a "when", but I feel like some preparation for what might happy is warranted.  Like the surgeon said, she hopes I don't go off and get a pink ribbon tattoo because when people do, and find themselves back in the office a few years later, that permanent reminder of that last time only annoys.  So while I'm happy, and I've celebrated (more on that in a bit), I'm not going too crazy.  And, because the radiation went so well, and didn't seem that hard, it sort of feels like a modest celebration is all that is warranted. 
 
So it was 2:30 and I was done.  I felt like treating myself, which for me usually means food (no wonder I have weight issues!), but I didn't have my wallet with me so headed home.  I decided to walk to the nearby bakery where I got a "worth it" cupcake and pretty decent cookie:
 
Buckeye style...mmmmmm...peanut butter.  And that was pretty much it.  I spent the rest of the afternoon/evening basically lounging and thinking about it all. 
 
Today, I worked with students all morning and then enjoyed lunch (courtesy of my generous colleague in celebration) at the Mexican restaurant years-in-development near campus with the work friends.  After, my overly generous mom had sent my a spa gift certificate so I decided to have a much more enjoyable 2 o'clock appointment and get a pedicure. 
 
That's a little bit of color WU crew!  I think it was called "Clay" :)  The spa is super posh and fancy, not my total comfort zone, but enjoyable none the less!  I go back tomorrow for my massage.  There are some special concerns/considerations with massage now given  the lymph node removal and recent radiation treatment.  Mostly, he can't work the tender areas and can't use hard pressure on the side with node removal.  Shouldn't be a problem as I'm really looking forward to some leg/hip/low back work.  Getting back into the swing of working out comes with a few aches and pains!

After the fancy treatment, I shopped a little, which didn't do much to lift my spirits (clothes being expensive, not fitting well, etc.).  May just have to keep rocking the workout pants and a couple pairs of jeans that fit this summer!  While I was letting my toes dry, I decided to use the rest of the movie gift card my mom had given me (she spoils me...she knows it, I know it, we're ok with it) to buy a ticket to see Tomorrowland.  Looks like reviews are a little mixed, but I enjoyed it.  Feels a little bit maybe like the young adult version of Wall-E in some ways.  I won't spoil it for people, but there's a bit of a "lesson" in it, and one that hit me pretty hard.  And if Disney wants to try to use it's power and influence for good, I'm ok with that.

If we're Facebook friend you may have seen I shared a couple TED talks by Brene Brown, a researcher on shame and vulnerability.  I read her book Daring Greatly a couple days ago (literally in a night + a little bit...so much time when you don't get sucked into binge Netflixing!).  Yes, it's self-help, and I know that's not everyone's thing, but I really enjoyed it and liked a lot of what she had to say.  It made me think a lot also about the whole "journey" of the past nine months.  I've probably been more vulnerable on this blog than I even realize.  And, I think that has helped me fight, or enter the arena as she might say.  I also think in general, the cancer has forced vulnerability upon me.  It took away any invincibility I thought I might have had (and I didn't think I had that much to start).  And with that came courage and strength. 

Another concept in the book, talks, and other self-help/psychology type readings (yes, I've read a few, and discussed them with therapists I've seen, and yes that is plural) is the idea of gratitude.  A lot can be said for the simple act of recognizing that which you are grateful for.  As my one shrink said, even if it's something as small and seemingly insignificant as being thankful that someone painted the yellow stripes down the middle of the road so that cars don't run into each other, we can always find something to be grateful for. To list my gratitudes here would take up far too many lines, but I'll simply put this as another "Lesson Learned".

Be more grateful.
This is an emotion you can't get enough of.  It's the best kind of uncomfortable to have an overwhelming sense of gratitude.  It's happened many times towards great people, opportunities, and moments that this cancer brought upon you.

So I'm done.  I don't think I'll be done with this blog.  There's still things to come...last reconstruction, clinical trials, follow-ups, etc. So you're not done with me just yet :)

As I was waiting to be seen on Thursday, I overheard (thin walls!) the exam room next to mine.  Combined with listening to the NP and docs dictations, I could piece the story together pretty well.  Diagnosed in 2009 (if I'm remembering right) with stage III breast cancer (like mine), at her yearly check-in. All's well.  There was real joy in the voices of her, her husband, and the doc to see one another and have nothing much to talk about other than what was new in life.  That's one appointment I will look forward to. 




Tuesday, May 19, 2015

A Welcomed Cancellation

Saw the radiation doc for the routine weekly skin check yesterday at treatment.  As I mentioned, I started to peel from the burns and it's got increasingly worse.  If I was tech savvy enough to do the Buzzfeed-style "Warning: Graphic Image.  Click to reveal" black boxes, I would.  Instead, just take my word for it. 

Because of the skin damage that I have and that it is also occurring around my lateral scar, the radiation doc has decided to cancel the five scheduled "scar boost" treatments. Apparently, a lot of people don't do them (particularly if there's been reconstruction) and nothing in my pathology suggests it is necessary.  So...
my last radiation treatment is Thursday!
 
It was surprising, but great news.  I checked into leaving earlier for California (since I had originally scheduled my Friday post-treatment departure) but on short notice those flights are considerably more.  Plus, it will probably be good to not miss additional days, so I can be around for my summer students (first meeting with them yesterday went well, but multiple projects is a lot to keep track of!). 
 
Thursday is also my 3rd anti-hormone shot as well as an appointment with my oncologist, so will be a big day.  It'll definitely be a change to go to such infrequent appointments!  I need to contact the Indiana doc about getting in the clinical trial, and there's still plastics and some reconstruction (ahem...nipple) left, but this is the last big step!
 
Not bad news for a Monday.

Wednesday, May 13, 2015

Start of Summer!

Pardon the lack of posts...I know that some of you rely on it to stay in touch. Just realize that no news is good news in this case!  I'm feeling much more like myself, back to my 'normal' life, and who wants to hear about that?!  As much as I have joked that people would love a movie of my life, I don't think it's all that interesting!

After classes finished (my last post), finals happened (more stressful for the students than me), I hunkered down and did some grading, attending graduation where "President Bartlett" accepted an honorary degree...
Haha, I'm the one taking the picture in the middle left.
 
It was different than last year as I knew the majority of students graduating from our programs.  We line up and give hugs, and I said goodbye to a lot of really great kids.  The next day I finally finished uploading grades and I was done done. 
 
What a year.  It seems like so long, yet in some ways it flew by.  I know I don't give myself enough credit for not just surviving, but continuing to thrive (as my colleagues, friends, family, etc remind me) this year.  Remember those Lessons to Remember from a past post?  Here's another one...
 
Anne, you're capable of giving yourself credit.
You did it on this blog.  For "everyone".  Do it more often. You deserve it.
 
But enough of the mushy stuff...
 
The summer brings about a time of renewal for academics and it's an important one.  I've allowed myself to take it pretty easy this first week.  It'll be a busy summer of research and advising students, but I checked out a little bit the past few days which was needed.  It probably helped it felt like summer as it was nearly 90 here!
 
Speaking of heat, how's radiation?  Well, it continues to go pretty well.  I started to have the skin irritations I was warned of, including peeling skin (I'll save you the grisly photos on here, but if you want to see, just let me know...).  It has led to a new use for pantyliners though..

Got to prevent any rubbing...
 
My preferred mode of transportation to and from treatment has been my trusty (and pretty!) commuter bike:
 
With very useful pannier and basket.
 
It feels pretty good to walk in to that place, helmet in hand, glistening a little (or a lot) from some sweat.  Brings a sense of control back.  It's about a 3 mile ride from campus, with a little hill to push me a bit.  The way from there to my house has a couple bigger hills...while pretty, my bike isn't necessarily made for climbing, but it gives me a good quad burn!
 
If only a were running...and at that pace...
 
"Speaking" of running, I ran today!  And a little last Friday!  I did the 4 mile run/walk last Friday that Runners Plus sponsored, a good (but hot!) time with my friend Maura.  This morning, I met up with my colleague Diana in Yellow Springs to jog/walk on the bike path there.  Wasn't jogging fast, didn't jog the whole 5 miles, but I did jog a bit.  Considering it's been about 9 months since I was jogging routinely, I'd say the baby steps are moving in the right direction. 
Tuesday night, I was very "urban" and went to free group yoga downtown at the Riverscape PavillionGo w/ the Flow Yoga was teaching to 300 people!  It was pretty fun.
 
I'm on the middle left again, this time not taking a picture.
 
So as you might guess from my activity levels, other than the peeling skin, I'm not having any ill effects of the radiation (i.e. fatigue).  Hormone therapy is alright as well, though the hot flashes have returned.  Those combined with heat and my stubbornness to refuse to turn on my A/C in May leads to pretty sweaty nights.  Considering these treatments will last years, perhaps I should invest in these, or these.  

 
One of the side effects I'm working my way out of is that whole hair loss thing from chemo.  It continues to grow and I'm in a pretty awkward fro stage right now....
 
Post workout...always the worst time.
 
Fortunately, "product" comes in handy and helps tame the beast.  I've sort of moved out of the spiky look and into a combed 'do...thinking that could be an easier transition to a longer hairstyle.
 
Back is still a curly mess...
 
 
Other than the awkwardness of growing hair out, things are good.  Had friends over for Cinco de Mayo (if you've never made slow cooker carnitas, you need to...so good, so easy), played some croquet, had some good times.  I'm looking forward to being in this great house for a full summer.  I've already taken advantage of some good deck time while doing work, watching Netflix, etc. 
 
"Speaking" of Netflix, I'm nearing the end of my recent binge...Gilmore Girls.  I pretty much want to marry Luke Danes
 
Can't you see it?!

 
I watch too much TV. I know this.  After I'm done with GG I'm taking a break from screentime and going to get some reading in.  I usually avoid reading because a lot of times it'll keep me up at night, but it's the summer!  Less of a structured schedule allows for some flexibility, including catching up on sleep if necessary :)
 
Think that's about it for the update.  I booked a flight out to California at the end of May to visit (mom will be there too!), do some shopping for Sarah's wedding (two months from today!), and celebrate being done with radiation!  Looking forward to that!